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The following story was woven together from Chapters 18 and 19 of The Cure Trap, my forthcoming book, about why the most funded word in medicine keeps failing patients.
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I have been a big proponent of Adaptive Deep Brain Stimulation (aDBS), often championing it as the next frontier in neuromodulation.
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Last week I went to Boston for what turned out to be one of the best advocacy trips I have yet taken.
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The loss of dopamine neurons in the substantia nigra is often cited as the defining tragedy of Parkinson’s.
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Adaptive Deep Brain Stimulation has been a medical miracle for me.
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It has been over 5 years since they burred holes all the way through my brain.
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The next twelve months represent a stress test for Parkinson’s research.
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Functional Neurological Disorders (FNDs) frequently co-occur with Parkinson’s disease, yet they remain systemically misdiagnosed and severely misunderstood in clinical settings.
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A Note on Perspective: I am a patient with Parkinson’s disease who has spent a decade at the intersection of clinical research and biotechnology.
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For too long, we have viewed Parkinson’s through a reductionist lens—a simple shortage of dopamine in a specific corner of the brain.
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Lessons From a Decade in Parkinson’s Disease Patient Advocacy Thirteen years ago, a neurologist in a dreary basement office told me to quit my job in China and move back home.
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Yesterday I got to visit what felt like a genuine wizard’s shop.