ME/CFS Research Review

by Professor Chris Ponting A guide to the Biopsychosocial model recently put out by Long Covid Advocacy ultimately brought me to a 2005 book chapter, written by Professor George Davey Smith, entitled The biopsychosocial approach: a note of caution in Biop…

The UK government has given nearly £5 million to fund full sequencing of the DNA of 6,000 people with ME using the best available technology.

A new study strengthens the findings that ME/CFS is a disease with a highly unusual feature.

Scientists, people with ME/CFS, and their charities came together to create DecodeME, the world’s biggest ME/CFS study – and its results are striking. 18,000 people with ME/CFS gave their DNA, enabling DecodeME to reveal eight genetic signals for the illn…

Several small and quite different ME/CFS studies have come up with the same tantalising finding – and now a team of two very talented resarchers, one a patient, are embarking on a robust replication that could help move the whole field forward.

A study has analysed existing genetic data in a new way to link 14 genes to ME/CFS and identify many patient subgroups.

A Norwegian team has published the largest analysis yet to look for DNA differences that could pinpoint what goes wrong in ME (also known as chronic fatigue syndrome, CFS).

Publicly funded research aims to benefit patients and the best way to make sure it does is for researchers and funders to partner with patients.

Update: the final guidelines, which apparently said much the same as the initial ones, were due to be published on 18 August, 2021.

I am delighted to have a guest blog from the talented blogger and advocate Michiel Tack and the remarkable advocate Evelien Van Den Brink (who famously lobbied the European Parliament).